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Jerry Drumm hasn't one gray hair in his head,[link widoczny dla zalogowanych], nor is there a trace of a wrinkle on his face. Why would there be - Jerry is only 10 years of age. Some would say that "it's just a sign of old age,[link widoczny dla zalogowanych], it can come to us all", but for some it comes sooner than you could imagine. Jerry has juvenile arthritis. Juvenile Arthritis is a cruel fate for a child. This is Me - Growing Pain will show how a Jerry Drumm copes admirably with his disease.
Born in Donegal in 1999,[link widoczny dla zalogowanych], Jerry was like any another young boy. One summer's evening his parents Feargal and Lurleen were driving from visiting relatives and a rash kept appearing, disappearing and then reappearing all over Jerry's body. She immediately thought it was meningitis as she grabbed Feargal's glasses from his head to do the test,[link widoczny dla zalogowanych], "it was the only glass in the car". They sat by Jerry's bedside in Letterkenny Hospital for six weeks. The weight was falling off him and the doctors just couldn't discover what was wrong. They feared the worst. Then they transferred him to Our Lady's in Crumlin. In two days they confirmed Jerry had arthritis.
Lurleen,[link widoczny dla zalogowanych], 39 has cerebral palsy and arthritis. She was determined to make sure Jerry's life was very different to hers. Lurleen brought great strength and forward thinking in teaching Jerry to live with his arthritis. The Drumm's moved to Letterkenny in 2008; up until then they had been living in Donegal town. Jerry's doctors were in Letterkenny. They faced 100km around trip every couple of weeks and sometimes days; it made sense for them to move. It made even more sense as Jerry's younger brother Daniel was diagnosed with Arthritis at three months. "We diagnosed Daniel ourselves,[link widoczny dla zalogowanych], we recognized all the signs from Jerry", says Feargal. Jerry and Daniel are very close,[link widoczny dla zalogowanych], "I help Daniel with his exercises on the Wii. I make sure he does them,[link widoczny dla zalogowanych], they are very important to both of us".
Jerry is a very caring young boy; he takes great pride in everything that he does,[link widoczny dla zalogowanych]. "I will be getting my own room when we move to our new house in May and mum will have purpose built kitchen it will be brilliant,[link widoczny dla zalogowanych]." His alarm goes off every morning at 7am. "I usually lie in bed for a few minutes and then I think about getting up",[link widoczny dla zalogowanych]. His legs can be stiff in the morning so he needs a bit of time to get himself out of bed. Jerry's main pain is in the joints of his fingers and knees. "I can't tie my shoelaces so I wear runners and shoes with no laces". He has trouble holding pencils so he uses grips or extra chunky pencils. "I sometimes loose the power in my grip for no reason which can be very annoying",[link widoczny dla zalogowanych].
Not been classified as different is very important to Jerry,[link widoczny dla zalogowanych], and when he started in his new school he told his class mates about his arthritis. They told him their granny's and grandad's had it. He told them I had it as well and so does his granny! Jerry has a lot to cope with. He is extremely independent and knows how to look after himself. He had a setback a few weeks ago. "Jerry's pain threshold is enormous and the pain from the appendix was dangerously high when we took him to the hospital", says Lurleen. Twice a year the Drumm's must make the 500km round trip to Our Lady's in Crumlin for a twenty minute appointment. "Mum isn't able to drive and dad has to work so we have to go on the bus". There is only one pediatric rheumatologist in Ireland,[link widoczny dla zalogowanych], waiting lists are long.
Despite everything they are a very positive family. "We look at what each of us can do rather than focusing on what we can't", says Lurleen. Jerry's motto in life is "use it or lose it".
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